Thursday, March 25, 2010
It looks like we have another diagnosis for a Marchenko girl. This time it's for Evangeline.
She has Atlantoaxial Instability (also known ass AAI).
12-15% of children with Down syndrome have this gap in between vertebrae; sometimes it means no bouncy houses or gymnastics. Rarely it means spinal surgery.
As far as I know right now Evangeline has a 5mm gap between her C1 and C2 vertebrae. We have an appointment scheduled with Polly's neurosurgeon next Wednesday to find out what that means for Evie.
You know, there are some people whose children never even break an arm.
I know, strange to think.
I'll keep you updated.
On a brighter side, Evangeline has started to wave hello and bye bye (also saying "ba ba"). She seems much more comfortable in our family and has even started to interact with toys a bit. Today I kept pressing a baby's stomach. The baby would say "Mama" and Evie would fall apart giggling.
So great to see.
It's hard to believe this little girl in the picture at the top has been home for eight months.
Love is blossoming.