We need prayer for Evangeline. About a year ago she was diagnosed with something called Atlantoaxial instability (AAI), a spinal abnormality between the C1 and C2 vertebrae. It's another by-product for some kids with Down syndrome. Anyway, a year ago the gap wasn't that big and it was stable, which was great news for us because a wide, unstable gap could warrant spinal fusion surgery and months in a halo. Not fun at all.
On Sunday, while I was getting Evie
ready for church she was cuddling on my lap and I noticed a pop like
movement reoccurring near the top of her spine (right where her
called her neurosurgeon's office on Monday about it (the same guy who
did Polly's brain surgeries) and he wanted to get her in right away for
neck x-rays. I have spoken to two other moms of kids with DS and AAI,
and both of them said the popping isn't good, their kids had it too, and
ended up needing the fusion.
So we go in tomorrow morning at 7:30am for the x-ray and then see the neurosurgeon at 9:15.
Please pray? I don't have a good feeling about this. I am really anxious today.