Tuesday, November 8, 2011

Evie needs prayer

We need prayer for Evangeline. About a year ago she was diagnosed with something called Atlantoaxial instability (AAI), a spinal abnormality between the C1 and C2 vertebrae. It's another by-product for some kids with Down syndrome. Anyway, a year ago the gap wasn't that big and it was stable, which was great news for us because a wide, unstable gap could warrant spinal fusion surgery and months in a halo. Not fun at all.

On Sunday, while I was getting Evie ready for church she was cuddling on my lap and I noticed a pop like movement reoccurring near the top of her spine (right where her abnormality is).

I called her neurosurgeon's office on Monday about it (the same guy who did Polly's brain surgeries) and he wanted to get her in right away for neck x-rays. I have spoken to two other moms of kids with DS and AAI, and both of them said the popping isn't good, their kids had it too, and ended up needing the fusion.

So we go in tomorrow morning at 7:30am for the x-ray and then see the neurosurgeon at 9:15.

Please pray? I don't have a good feeling about this. I am really anxious today.


  1. I am praying Gillian! I will be at work tomorrow so I will be praying. Let me know if you want to chat after I am done with work! Love you guys!!!

  2. That previous comment was from me Gill!!

  3. I found your blog on another blog roll and I've enjoyed reading your posts. I too am a former cross-cultural missionary (in Central Asia) and I have three kids, the youngest with Ds.
    Just wanted to let you know that Evie and your family will be in our prayers!

  4. oh no... hang in there mama.. praying all is ok for Evie!.. love you!

  5. I will pray, my friend. So sorry for the anxious thoughts. Mind your mind and hold on to the truth. :)

  6. Praying for Evie and her sweet family tonite

  7. We are praying for Evie!!! I have to be honest when I say going through surgery with Axel, while stressful, was MUCH better than years of worrying about every time he tried to just be a normal kid and have fun!!! And, he can now stand up to his sister's headlocks where before I would have totally freaked out!

  8. Nothing takes the Lord by surprise! You know this. Praying for peace for you and that you see His hand, no matter what. Praying that He protects your sweet girl, too. Hugs!

  9. I am praying. I've been following your blog since you brought Evie home, but I think this is my first comment. I will be praying for her, you the doctors and your family.



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